I also am in same situation as you.
I have many of same symptoms as you do.
Lately I have been having increased blurred vision and don’t know why.
I do use eye drops for my dry eye condition.
I too am at a standstill with my neurologist, and my hematologist-oncologist who is watching my MGUS levels.
So far so good.
It’s tough when noons knows what’s wrong with you or being told that they can’t help you.
My hematologist is sending me for a skeletal body X-ray to make sure I have no tumors anywhere in my body.
Had one last year and it was fine.
I’m waiting to hear about having plasmaphoresis at the hospital.
After that I might be approved for a new drug infusion Retuximab that’s been recommended by my neurologist.
I guess there’s nothing else I can do but try a few new treatments and maybe one will help me.