Replies to Hello, I was just diagnosed with MGUS. I am 42 yr old white woman. Weight loss…

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Blood Cancers & Disorders | Last Active: Sep 29, 2023 | Replies (17)

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@oliviahutson

Hello,

I was just diagnosed with MGUS. I am 42 yr old white woman.
Weight loss 30 lbs
Skin rashes
Itchy skin
Soaked sweating at night
Enlarged tongue
Very fatigue
Neuropathy
Bad hip and back pain
Blurred vision
Ringing in ears
High heart rate when doing nothing
Dizzy
Bouts of diarrhea and constipation
Kappa/lambs ratio 10.5 (high)
Bence Jones in urine
M-spike 2
Bone marrow showed 5% plasma cells
IGA 953 (normal under 425)

Docs thought it was Amyloidois but they can’t see any in my fat aspirate or bone marrow.
Can you tell me why your doctor decided to do chemo for MGUS? Did you have any of these issues? Would love to know more about your numbers and issues.
I can’t live like this and believe there is more my doctors can do. Want my life back.
I was a fitness freak for years then over the last year all this started happening.

Thank you! 🙏

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Replies to "Hello, I was just diagnosed with MGUS. I am 42 yr old white woman. Weight loss..."

Becky, Volunteer Mentor | @becsbuddy | Sep 27, 2023

@oliviahutson Good morning and welcome to Mayo Clinic Connect! I’m really sorry to hear about your diagnosis. It can be a real bummer to get a disease that stops you in your tracks. I know because i used to love to bike ride and now I can’t.
https://www.mayoclinic.org/diseases-conditions/mgus/diagnosis-treatment/drc-20352367. When you read this information from Mayo Clinic, you’ll see that some doctors recommend chemotherapy and others don’t.
Let’s ask these members if they can help @2012can. @dianegrant @gingerw @pmm.
Ask the docs, on your next visit, ‘why did you choose this treatment.’ Sound like a good idea?

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