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Small Fiber Neuropathy

Neuropathy | Last Active: Oct 3, 2023 | Replies (213)

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@ray666

Hi, julbpat. Possibly I should not have used the word "pain." When I'm walking, I'll sometimes feel "discomfort," which may be due to a number of causes: (1) not the best-fitting shoes, (2) failure on my part to trim my toenails, pumice the rough patches, etc., or (3) a bunched-up sock. I believe my orthotics are well-fitted to my feet. But that's about it: "discomfort" (sometimes) when I'm walking, but not what I would call "pain." Most telling, in my mind, when I consider my PN, is having no foot pain when I'm at rest, either barefoot around the hose (as now) or when sleeping. That's why my podiatrist and I both feel that my periodic foot "ouches" are mundane and not related to my PN. Have you made any progress toward getting relief? –Ray

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Replies to "Hi, julbpat. Possibly I should not have used the word "pain." When I'm walking, I'll sometimes..."

Discomfort is way better than pain! When my neuropathy is misbehaving, my feet, especially toes, burn. It feels like they are submerged in ice water. Freezing combined with burning. Fortunately I rarely experience that anymore on Tegretol, but it’s really hard to sit and relax, or sleep, when your toes are burning! Glad to hear yours is just normal foot aches.
The bunched up sock feeling is familiar with length dependent small fiber neuropathy. My family is used to my stopping and removing a shoe to rearrange a sock (that is not bunched up), or shake out a tiny rock or grain of sand. I wear sandals in the yard, and no grass or leaves can be between my feet and the shoe! Lots of stopping and rearranging!