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Is anyone using Rytary?

Parkinson's Disease | Last Active: Oct 15, 2023 | Replies (82)

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@hopeful33250

Hello @oronogo,

It is great to hear that the Rytary is helping with many of your Parkinson's symptoms. I am sorry to hear that you are having blood pressure problems. Often, meds for Parkinson's (PD) can result in lower blood pressures, however, it sounds like yours are causing more difficulties because of the aortic aneurysm.

I also take PD medications and also have aortic insufficiency (somewhat different than an aneurysm) so I understand a little about how the meds for both issues can interfere with blood pressure.

As a healthy lifestyle will help with both PD as well as heart problems, I'm wondering if you enjoy daily moderate exercise? This can help with both cardiac problems as well as the PD? If you are not engaged in exercise, you might consider talking with both your cardiologist as well as your neurologist to see what type of exercises would benefit you at this time. Have you had any physical therapy for Parkinson's?

Regarding the price of Rytary, that cost of meds can be difficult. Have you contacted the drug manufacturer to see if there are any discount programs that they offer? Are there any pharmacies in your area that honor the prices of Good RX? Good RX can help lower your prescription costs. Here is their website where you can check on the price https://www.goodrx.com/go/homepage-lander-sem-7-tl?

I hope that you can talk with your doctors and find some help with your symptoms. Will you post again and let me know how you are doing?

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Replies to "Hello @oronogo, It is great to hear that the Rytary is helping with many of your..."

I’m seeing my local dr this week, to schedule therapy. I have had big hand therapy and I’m setting up more now. I have had trouble with my knees so I have gotten out of the exercising, but slowly getting back into it. I feel walking is the best exercise.
I did call the drug company for help with Rytary cost. They have qualified me for one year and then I will have to re-qualify at the end of that year. I feel the rytary has helped a lot with on time. I still need to work more on balance and walking. I feel my Tremors are much better, but still having some when medicine is due. The doctor started me on three pills four times a day and at that time said I might need four pills four times a day. I have not talked to the PN doctor since I started the medication.
I will try to keep you updated as I continue on the Rytary.