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Jak2 Detected, Healthy otherwise, What's next?
Blood Cancers & Disorders | Last Active: Sep 29, 2023 | Replies (17)Comment receiving replies
Hi, I was just reading your thread and feel your anxiety. I was recently diagnosed with PV in January. I just turned 57 this summer and am a fit and healthy person so this was a shocker! Long story short, it took about 6 months to get the hydroxyurea dose right and I get phlebotomies about every 8-9 weeks. My numbers are good now and I’m hoping we got it under control. I wanted to let you know that it’s completely up to you to do the bone marrow biopsy. PV can be diagnosed with it. Your treatment will be the same with or without it .a My hemo/oncologist said
Unless there was a sign of something else, he was comfortable sparing me the bone marrow test. Please just do your research and you can make an informed decision. Some people need to have it for their own piece of mind and final confirmation of the disease and it is what ever makes YOU comfortable. Best of luck and things will get easier…
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I think everyone’s journey with this disease is different with many different symptoms and need of care. One needs to trust the Dr they are seeing, but keep an open mind to treatments needed. I research all the time and have found that new treatments are being discovered everyday. I get up everyday and carry on the same as before I was diagnosed with some limitations. Listen to your body.Now remember, we all have different symptoms that are at different levels of severity, so don’t dwell on what you need to, but stay informed and ask alot of questions. Live your life to its fullest everyday, because whether you have a disease or not, non of us knows how much time we have. Stay informed.