Hello,
I certainly understand , empathize and appreciate how you feel. I’ve personally dealt with several or more severe disabilities and debilitating symptoms and ongoing side effects for over 32 years.
Firstly, the losses of lifestyle and physical strength, stamina and ability to participate in life as you one did are real.
It no not “negative” to discuss and share what you’ve lost and how you feel. The circumstances you describe are FACTUAL. Most people in society do not experience these kinds of losses and to the magnitude you have so it’s very difficult and challenging for most people to authentically relate to them. The Michael J. Fox quotations are very genuine. Coming to a certain level of “ACCEPTANCE” about what is and how it’s been in a peaceful, accepting and graceful manner don’t come easily for most of us. Especially those of us who were very active, successful and leading full lives. Sometimes, the amount of pain, loss and suffering are unbearable. At some point in time I realized things had become so bad for me that I was “Suffering from the Suffering!” I began to understand that this Chan happen over a long enough period of a seriously debilitating lifestyle. However, I also learned that it was up to me to change this and that in fact, I could learn how to manage my suffering so I wasn’t complicating the situation for myself. Your initial and ongoing suffering from the pain and losses associated with your disability are 100% real and genuine. However, when we start to emotionally suffer about or over our suffering we’re adding an additional layer that doesn’t need to be there and that in fact……we’ve created and are responsible for. We can’t always control or manage our suffering from the pain and loss but we can manage and rid ourselves of our own self inflicted “suffering over our suffering!”
Long term severe debilitation can take most of your life away and that’s also a fact and reality of the situation. We can’t control what happened or the ongoing results and circumstances. However, we all must be absolutely 100% responsible for how we manage all of the circumstances and challenges in our life.
I wish you the very best and hope that will continue to succeed in managing your debilitation in a way that helps you grow, become kinder and wiser and more gracefully able to accept your life condition as being………….”IT IS WHAT IT IS!”
Kindest regards and best wishes always,
Phil
GODSPEED