@shari715 do you use a chemo cream with your light box? My son is seeing his Dermatologist and oncologist on Nov 7 and I want to ask about some treatments. As I said in my initial post, we have pretty much have been left in the dark about this rare lymphoma. I am really hoping he will get staged at this visit and given a treatment plan.
How does everyone feel about Clinical Studies? My son is 33 and nothing has been talked about in going forward But, the oncologist called and wanted to put him in a clinical study that was just approved in June. There are not enough people with CTCL/MF in our area to have completed this study. They need 20 people to sign up for it and they don't have 20.