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Restless Legs - Any suggestions as seen many doctors and medications

Sleep Health | Last Active: 9 hours ago | Replies (63)
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@reillyg1013

So sorry, I know exactly what you are going through as I too have had RLS since I was young. I finally saw a sleep specialist when I was 64, and was given pramipexole, which worked for about a year, but then I started augmenting. The answer I got was to get on a higher dose- I refused and stopped the med on my own in June and then joined the RLS Foundation. The information was invaluable and I have taken much of their advice. For people with RLS, your iron ferritin levels should be at least 75 (much higher than what is considered normal) , and magnesium supplements should be magnesium glycinate, intake 500 mg 1 hour before bedtime. Even if you don’t join the foundation, they still offer a great deal of advice on their website.
Hope your journey gets easier.

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Replies to "So sorry, I know exactly what you are going through as I too have had RLS..."
3dogs | @3dogs | Sep 26, 2023

Hi, thanks for the info...I've tried pramipexole and had an unacceptable reaction, which is good because later I read that some of the drugs used to treat RLS can make it worse, and the result would be higher dose and taking it forever. I asked my doctor about that and was told that yes some can make it worse, but they did not know the dose that started making it worse, so they always start people on a low dose. I might try the magnesium glycinate as I currently take Mag-Ox 400 Magnesium Oxide as other magnesium made my stomach upset and these do not. I was just taking in the morning and about 2 weeks ago started taking another dose at bedtime. was doing in the morning as my RLS will start during the day, but mostly around 5 or 6pm. I will also check my last blood work on Iron level as I took extra Iron but did not notice a difference and my new primary doctor (moved) said to stop after a year on it. thanks for your info....

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