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Anyone stopping immuno suppressing drug had a flare up?

Posted by ead @ead, Sep 5, 2023

I am diagnosed with RAintertistial lung disease. I have not had any major joint issues. After a bad reaction to azathoiprine we (Dr. and I) decided to give me a break for a bit before starting a new drug. Within days my hands and wrists swelled and hurt. I couldn’t even close my fingers. Now I wake every morning with redness, swelling, and pain. I am wondering if anyone has experienced a flare up and unexpected, new symptoms after stopping a drug.

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jerrysgirl3 | @jerrysgirl3 | Sep 22, 2023
In reply to @reets70 "I’ve been on hydroxy for 15 years and never had N issue with it. I was..." + (show)
@reets70

I’ve been on hydroxy for 15 years and never had N issue with it. I was also on methotrexate for 5 years with o issue except thinning hair. I was diagnosed with PMR 6 months ago and was on Medrol. Now off and in the middle of. a flare. There’s no magic pill for these illnesses.

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@reets70 No there isn't. I think I'm getting over a flare. Hair not falling out in clumps anymore! Having two major auto immune issues is a nightmare. I've always had issues with meds and their fillers. You're "lucky" to be able to take helpful meds and not have side effects. 😊

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lharrison74 | @lharrison74 | Sep 26, 2023
In reply to @becsbuddy "@lharrison74 RA can be so painful and difficult to handle. What made you go off of..." + (show)
@becsbuddy

@lharrison74 RA can be so painful and difficult to handle. What made you go off of methotrexate? Were you going to try a newer drug?
Can you tell us more about the change?

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It was not intentional at all. My doctor's office screwed up and I couldn't get syringes for what ended up being 3 weeks. My doctor ended up giving me a solumedrol injection for this first time ever when I went back to see him.

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