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With Waldenstrom, what side effects did you have with ibrutinib?

Blood Cancers & Disorders | Last Active: Oct 17, 2023 | Replies (13)
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@emma405

Are there any Waldenstroms patients on an immunotherapy first line inhibitor (e.g. Ibrutinib) who have experienced a sudden decrease in hemoglobin and increase in igm paraprotein after having Covid? If so, did bloodscores recover? How long did it take? Patient is a 64 old male who still feels fit and wonders how long is reasonable before agreeing to an alternative treatment option such as chemotherapy?

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Replies to "Are there any Waldenstroms patients on an immunotherapy first line inhibitor (e.g. Ibrutinib) who have experienced..."
Colleen Young, Connect Director | @colleenyoung | Oct 4, 2023

@emma405, I moved your question to this existing discussion:
- With Waldenstrom, what side effects did you have with ibrutinib? https://connect.mayoclinic.org/discussion/in-waldenstrom-what-side-effects-one-faced-while-on-ibrutinib/

I did this so you can connect with other members living with Waldenstrom's who are treated with immunotherapy like @ejrquast and @vasu11.

You may also be interested in this related discussion:
- Waldenstrom macroglobulinemia: What can I expect with chemo?
https://connect.mayoclinic.org/discussion/waldenstrom-macroglobulinemia-recently-diagnosed/
Have the hemoglobin levels recovered in the meantime?

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