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I had DIC in 1984 after the birth of my first child. He was born on Saturday and on Sunday I was so swollen I looked as if I had not had the baby yet. I also was having trouble breathing. Next came ICU, blood draws every few hours, nurses holding pressure packs on my episiotomy and on my arms where they would draw blood trying to stop the bleeding. I was out of it most of the time, so I really don't know how long I was in ICU. I was given Heparin at the time. Fast forward to 1995. I had a DVT in my right leg. Was diagnosed with Protein C & Protein S deficiency. Was put on Heparin and then Warfarin. I am still on Warfarin and will be for the rest of my life. In 2005 I was in a car wreck and then about two years later, I was diagnosed with Fibromyalgia. I do have pain, but not the debilitating pain some speak of with FM. My problem has always been mainly extreme fatigue, depression, and cognitive issues. In 2012 I had a hysterectomy due to another bleeding problem. Around that same time, I also was diagnosed with a Factor II mutation. My fatigue has remained about the same over the years, sometimes better, sometimes worse. The depression has worsened and the cognitive issues have worsened over the last 4 - 5 years. After reading some of the posts, I am now wondering if this has more to do with the DIC and other blood disorders than with FM since I don't have the extreme pain associated w/ FM. I have been tested for all sorts of autoimmune diseases as well as MS and the doctors say "oh, well, we can't find anything wrong, so it must just be the FM getting worse." Any thoughts? I would really appreciate any thoughts anyone may have.

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Replies to "I had DIC in 1984 after the birth of my first child. He was born on..."

Welcome @dtyner60, you’ve been living with disseminated intravascular coagulation (DIC) for a long time. To help you connect with others living with DIC, I moved your story to this existing discussion:

- Anyone had disseminated intravascular coagulation (DIC)? https://connect.mayoclinic.org/discussion/long-term-effects-of-d-i-c/

Click the link to read previous posts. I’m also bringing in fellow members like @bossmomma54 @kristap31 @kbreder @suzieq612 and others who can share their thoughts with you about DIC and distinguishing it from other conditions and symptoms like fibromyalgia.

It’s hard to not have answers. What helps you manage the pain?

Hey, so I also DIC in 2020 after a postpartum hemorrhage. I had a lot of weakness afterwards and trouble gaining full strength back. I ended up needing multiple surgeries afterwards (acl repair, left ovary removed, right ovary removed, cervix, endometriosis, and ovarian remnants removed, and the last one was an endometrioma I had removed). I did have memory and speech problems when I was released from the hospital, but over time they got a bit better. I also have fibromyalgia and my fatigue has been much worse since the DIC. I do have the extreme pain associated with fibromyalgia though, actually going in today to find out why it's been so much worse recently. I did not have to go on any of the medication you had to be on though, so I'm not sure if my answer helped a ton!