I had DIC in 1984 after the birth of my first child. He was born on Saturday and on Sunday I was so swollen I looked as if I had not had the baby yet. I also was having trouble breathing. Next came ICU, blood draws every few hours, nurses holding pressure packs on my episiotomy and on my arms where they would draw blood trying to stop the bleeding. I was out of it most of the time, so I really don't know how long I was in ICU. I was given Heparin at the time. Fast forward to 1995. I had a DVT in my right leg. Was diagnosed with Protein C & Protein S deficiency. Was put on Heparin and then Warfarin. I am still on Warfarin and will be for the rest of my life. In 2005 I was in a car wreck and then about two years later, I was diagnosed with Fibromyalgia. I do have pain, but not the debilitating pain some speak of with FM. My problem has always been mainly extreme fatigue, depression, and cognitive issues. In 2012 I had a hysterectomy due to another bleeding problem. Around that same time, I also was diagnosed with a Factor II mutation. My fatigue has remained about the same over the years, sometimes better, sometimes worse. The depression has worsened and the cognitive issues have worsened over the last 4 - 5 years. After reading some of the posts, I am now wondering if this has more to do with the DIC and other blood disorders than with FM since I don't have the extreme pain associated w/ FM. I have been tested for all sorts of autoimmune diseases as well as MS and the doctors say "oh, well, we can't find anything wrong, so it must just be the FM getting worse." Any thoughts? I would really appreciate any thoughts anyone may have.

Jump to this post