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Liver transplant - Let's support each other
Transplants | Last Active: 2 days ago | Replies (1617)Comment receiving replies
Oh would love to chat more with you. I'm been in severe pain and lack of energy... I feel like a zombie. RA doctor thinks it's Trac but has to prove it's not RA so doing tons of test first. Meanwhile dealing with pain daily.
I also have same issue with stomach but now I'm also retaining fluid. Anything else your experiencing? Nauseous? I'm always nauseous but get hungry after 8pm.
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My labs are good and things are improving everyday. When I was on Tacro, my side effects were much worse, but when they switched me to Envarsus, which is the extended release form of Tacro, my side effects considerably lessened. Also getting off CellCept, which was awful for me and switched to Sirolimus made a big difference. I still feel some fatigue and minor issues that are manageable. I hope this helps and that you start to feel better soon.