You’re definitely not alone . Was finally diagnosed about 5 years ago. I don’t get too many major color changes, yet. My doctor only recently came out & told me it would never get better. Most likely worse. Why he waited, I don’t know.
I have similarities: tingles & numbness in hands and feet. Crazy how you can’t feel the skin, but the nerves along the bones are excruciating.
I’ve tried massaging my feet, not to kindly. That seems to help with the cold feet. Compression bandages likes ankle support & quasi knee support bandages-like you’d use for weak ankles, etc- seem to help a bit. I have to use them from below the knee to the balls of my feet about 8-10 hrs a day during the winter.
I had my thyroid removed in 2013 & noticed that if my dosage was off(hypothyroidism) the symptoms were much worse and travelled up my legs & arms(by about 6” & much number).
If I saw color changes that my doctor didn’t address I would check on possible circulation issues, personally though I have too many other issues to not check stuff out & I’m definitely NOT a doctor. I’ve just had it commented on.. then forgotten- it is a named condition but I can’t remember it off the top of my head.
I no longer take showers unless absolutely necessary. Tired of falling. If my feet get way too cold I do a short epsom salt soak of my feet. Sometimes have tried lavender oil rubbed on the soles.
My doctor’s only advice was to wear shoes all the time. And he finally stopped trying to get me to stop using my cane. No bare feet. The best thing about this is being able to crunch my toes or fingers & not really feel it.

I had to explain to the doctor that I don’t usually use the cane to support my weight..more as a form of sensory reinforcement. Like, I don’t know..if I can feel the vibrations & sensory feeling of what I’m walking on then I’m less likely to fall. He shut up after that. Now he worries if he doesn’t see my cane. lol.
Does anyone else have to see your neurologist monthly?