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I’m not that young. I’m 64. Pain started in my mid 50’s. Misdiagnosed and went through 3 different surgeries. It took my 3rd neurologist to properly diagnose it was SFN. But he seemed somewhat surprised it came back positive. After that he seemed at a loss on how to treat it. Just more pills!! I’ve missed out on so many things I wanted to do in retirement. The SFN forced me into an earlier retirement than I planned on. It was a physical job I had been doing over 30 years!!!! Just couldn’t do it anymore. But I also can’t do the activities I so looked forward to doing in retirement. I now live a sedentary lifestyle that was never me!!!! I can’t even dance with my wife!!
So frustrating. So depressing. Hoping for a miracle. But I’ve become quite skeptical. Unfortunately!!!!
Replies to "I’m not that young. I’m 64. Pain started in my mid 50’s. Misdiagnosed and went through..."
I understand more than I can say. My husband and I thought dancing in A senior community. We loved to dance. It’s hard not going places other friends and family want you to go. It’s hard coping with this. So sorry for you also like I said I’ll be hoping!
Wow, I could have written parts of your comments. I am 63. The realization comes in increments, doesn’t it? I tried something different yesterday. I walked a 1.5 mile easy trail but I used two trekking poles. And a friend joined me, which distracted me. I had to sit down once, and my face and hair were drenched with sweat ( another SFN symptom). But I made it! I can’t say it was pleasant, but I would much rather be outside than swimming laps indoors, which is my only other form of exercise now. The trekking poles helped tremendously.
We are new to this SFN ( still waiting to be fully diagnosed) have you looked into a Psyiatrist ? They are MD’s that work with people who suffer from neuropathy and or arthritis… doing PT, massage and likely even acupuncture…. I have heard it helps some people… we plan to look into deeper once we have the diagnosis.
Best wishes
Sheila and Doug
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I’m 78. I’ll be thinking about you. Hoping!