@pmm Patty, I had the same experience. When I needed to get a specialist, I had my memory kick in. There was a hematologist oncologist who had been an expert witness in a trial I worked. I contacted her office and was able to become her patient. While we did quarterly testing, she graduated me to six months. In hindsight, she felt really bad, because my numbers rose significantly. And I was moving 800 miles away. So, we did comprehensive testing, I had already connected with my current specialist and all records were sent. Two weeks after moving here I was in the new-to-me cancer center, with my current doctor. He has been a godsend in managing my condition.

MGUS does not need to be considered a death sentence, nor a hindrance to living our lives. It gives us the chance to have complete bloodwork more often, and feel comfortable that we are indeed being followed for things. Moderate exercise, good diet, stress-free living all go a long way to making the wheels turn smoothly. And being here on Mayo Clinic Connect to share with others. Nothing better than support from peers!
Ginger