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Tagrisso and diarrhea

Posted by franciekid @franciekid, Aug 29, 2023

I’ve been taking Tagrisso for about 6 weeks and with the exception of about 4 days in the 4th week, have had diarrhea every day. Anyone else? Thanks.

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Matthew K | @flusshund | Aug 30, 2023

Good Morning!

My experience is yes, that's how it starts. From what I hear, for everyone. There were times I was taking 2 Imodium a day.

However, it got better over time, dropping back to 1 a day and then stopping them altogether.

One month short of 3 years later, and I'm taking a tablespoon of Metamucil every morning to stay regular!

Wait until your nails start splitting in your sleep. OK, maybe not quite that bad. Today I'm taking 5 mg of Biotin daily, which has greatly reduced the nail-splitting tendency.

Wishing you all the best,
Matthew

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1 reply
whahoo | @whahoo | Aug 30, 2023

Are you on 80 mg? My onc dropped me to 40 mg because of hives. I have few side effects on 40 mg and it’s supposed to be as effective as 80 mg.

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2 replies
franciekid | @franciekid | Aug 30, 2023
In reply to @flusshund "Good Morning! My experience is yes, that's how it starts. From what I hear, for everyone...." + (show)
@flusshund

Good Morning!

My experience is yes, that's how it starts. From what I hear, for everyone. There were times I was taking 2 Imodium a day.

However, it got better over time, dropping back to 1 a day and then stopping them altogether.

One month short of 3 years later, and I'm taking a tablespoon of Metamucil every morning to stay regular!

Wait until your nails start splitting in your sleep. OK, maybe not quite that bad. Today I'm taking 5 mg of Biotin daily, which has greatly reduced the nail-splitting tendency.

Wishing you all the best,
Matthew

Jump to this post

Thanks, Matthew. I take Benefiber and biotin every day. No nail splitting yet.

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franciekid | @franciekid | Aug 30, 2023
In reply to @whahoo "Are you on 80 mg? My onc dropped me to 40 mg because of hives. I..." + (show)
@whahoo

Are you on 80 mg? My onc dropped me to 40 mg because of hives. I have few side effects on 40 mg and it’s supposed to be as effective as 80 mg.

Jump to this post

Yes, taking 80. No suggestion from my doc to cut the dose.
Thanks for sharing this.

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franciekid | @franciekid | Sep 9, 2023
In reply to @whahoo "Are you on 80 mg? My onc dropped me to 40 mg because of hives. I..." + (show)
@whahoo

Are you on 80 mg? My onc dropped me to 40 mg because of hives. I have few side effects on 40 mg and it’s supposed to be as effective as 80 mg.

Jump to this post

As of last week, in addition to red patches on my cheeks, my palms have been intensely itchy. Have 2 scripts for cortisone cream in 2 different strengths. Anyone else? Thanks.

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1 reply
Moderator
Colleen Young, Connect Director | @colleenyoung | Sep 22, 2023
In reply to @franciekid "As of last week, in addition to red patches on my cheeks, my palms have been..." + (show)
@franciekid

As of last week, in addition to red patches on my cheeks, my palms have been intensely itchy. Have 2 scripts for cortisone cream in 2 different strengths. Anyone else? Thanks.

Jump to this post

@franciekid, is the cortisone cream helping? How are you doing?

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1 reply
franciekid | @franciekid | Sep 22, 2023
In reply to @colleenyoung "@franciekid, is the cortisone cream helping? How are you doing?" + (show)
@colleenyoung

@franciekid, is the cortisone cream helping? How are you doing?

Jump to this post

Yes, cortisone cream is helpful. Palms no longer itchy. Redness on cheeks is sporadic. Thanks for asking. Doing well.

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