← Return to MAC: Anyone ever felt pain from MAC? So many questions

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@coder

Hi Jennifer, I just joined. Been battling lung issues since January and finally diagnosed with MAC after bronchoscopy. My pulmonologist started me on the 3 antibiotic today. Started me slow, taking just the azithromycin today, I will add another antibiotic Monday and finally the third Wednesday and will be on them all moving forward. I’ll be honest, I’m scared and all I know to do is pray and let God take the wheel. I appreciate this forum and the kindness and support that I’ve been reading. It has given me hope and less anxiety about this dreadful infection. God bless you Jen and everyone else on here.

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Replies to "Hi Jennifer, I just joined. Been battling lung issues since January and finally diagnosed with MAC..."

Hello and welcome to Mayo Connect. Jennifer has not been active here for a while, but we have many other helpful members.

The diagnosis of MAC and Bronchiectasis can be unsettling, as few of us have ever heard of these before.
Here are some great places to begin reading, just click on the links
https://connect.mayoclinic.org/discussion/resources-for-the-abcs-on-bronchiectasis-and-mac-ntm/
https://connect.mayoclinic.org/discussion/macntm-is-different-for-everyone-treatment-might-be-different-too/
At first it seems we have more questions than answers. Along with the other members, I am ready to try to answer whatever your concerns are.
I hope this diagnosis and medication start you on your healing journey.
Did you doctor talk to you about airway clearance as one of the ways to get healthy again?
Sue

Hi, Jennifer

Just a note of encouragement for you: I was on the three meds often prescribed for MAC, which I have (azithromycin, ethambutol and rifampin), for a year and a half without any significant trouble. I do admit having had some diarrhea, sometimes a bit of chest tightness (not pain), and I also felt a bit more crabbier/emotional than usual. But the drugs did help slow my illness. I am not sure if this helps or not, but I have GERD, too, so I also took Nexium in the mornings. I have a feeling that the Nexium helped me tolerate the meds, but I think a doctor could chime in on that. I prayed often that I would be able to tolerate the meds. I have since learned that clofazimine has good results for some, though only certain hospital clinics can prescribe that, apparently. Ask your doctor. I wish I had been able to get that. I wish you all the best. Stay strong. You can do this!
Mokie