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Living with MDS

Blood Cancers & Disorders | Last Active: May 17 5:49am | Replies (68)

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@colleenyoung

@lorieafoote, for some people hearing that your treatment option is "watch and wait" can be unnerving. I prefer to call it active surveillance so it doesn't seem like passively waiting for the other shoe to drop.

How are you handling the watch and wait status? Do the vitamin b12 shots help your symptoms?

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Replies to "@lorieafoote, for some people hearing that your treatment option is "watch and wait" can be unnerving...."

Been on watch and wait for over 5 years. Vitamin b-12 shots help for only afew days then I am back to dragging myself into getting my things done.just went to my oncologist office had a argument with him that he did a blood transfusion on me.after looking at my records he got a pissie attitude with me. Said I am low risk.I made a appointment with my primary and he put me on high protein diet,says I am close to being a anemic. So frustrated with this MDS and my oncologist.