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@nancywootten

I have severe white matter disease also. I had no idea until I got a concussion in a golf cart accident. A brain scan led to an MRI which then led me to Mayo Clinic. I am 68 years old an extremely active. I teach and interpret sign language and am in a band at church. Since my diagnosis I started on a fat-free vegan diet and started learning the ukulele and Spanish. I don't feel like this diagnosis is a death sentence bur rather a new way of looking at my life. I do more, not less. I love more, not less. I want to start a blog about this because so many people do see it as a death sentence when really none of us have a guarantee that our lives won't end TODAY on our way to the store or crossing the street.

I plan on living the dickens out of my life, however long or short it may be. My husband and I have set upon upgrading our home to be a safer place for me and a nicer one. We moved my office into the Florida room so I can look at my newly landscaped back yard while I work. I wonder why I did not always live with this new improved attitude toward life!

I got back to Mayo Clinic in November or December and I'm planning to knock their socks off with my cognitive testing. I know this white matter will catch up with me sooner or later but in my 'in-between' time, I'm living life.

Good luck and may God bless us all!

Nancy

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Replies to "I have severe white matter disease also. I had no idea until I got a concussion..."

Great outlook and I hope you are well🙏❤️. I’m 46 and had 3 strokes since April 2023 and the hospital have just confirmed I have a cavertoma. My white matter is very bad and the said it’s like the age of an 80 year old lady not 46? Kina hoping you could give me any tips or information. Thanks and hope your calmness and views keep you stronger x