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Interstitial pulmonary fibrosis
Lung Health | Last Active: Sep 2, 2024 | Replies (58)Comment receiving replies
Glad to hear things are going well for you both! As for me I'm still holding off on the Ofev. Recently someone wrote in about Saracatinib and how it sounds like it is working well for IPF. I may write to my pulmonologist and see what she thinks about it. I see her again in January but I'm not sure if I should wait that long before starting something. I had to quit my job but I'm getting some disability benefits for now. It's been a rather stressful year so it's hard to make decisions sometimes.
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So sorry to hear you had to quit your job, but at least you are getting disability. I will investigate theSaracatinib. I’m not recommending the Ofev, we are all different, but depending on your income, income of others living with you, and you resources besides your home, Ofev could be free from the manufacturer. There are other foundations that can provide copay assistance. They commit for a year for funding once you get approved. They don’t always have money, so you have to keep trying. Weekly. If you want more info, pm me.
Also, if you have done your research on this other drug, and are willing to try it, I would touch base with your doc sooner rather than later.
I wish you all the best, and please let me know how it works out