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DiscussionI have Cerebral Small Vessel Disease: How are you coping?
Stroke & Cerebrovascular Diseases | Last Active: Oct 1 5:38pm | Replies (144)Comment receiving replies
Replies to "I was diagnosed seven month ago, with 6 cavernous malformation, I went to the ER last..."
Hello Bellisima,
I was recently diagnosed with a cerebral cavernous malformation in the right temporal lobe. I had what I thought were migraines for years. I've blacked out too but I imagine they were actually small seizures. I go into Mayo Monday to have it checked out better. I'm really anxious to see what they have to say.
Where are your cavernous malformations? Do you like your doctors. How are you feeling on a day to day basis?
Im niot sure what the malfirmation are my husband has white matter disease his motor skills have been affected the most i guess most of the doctors we've seen are ok they dont offer us mush advice it seems like you have to figure things out for yourself
On a day to day basis he doesnt spend to much time on his feet because his balance is bad and since he sits all the time he tires easy when hes on his feet he doesnt talk to me about how he feels other than to say when hes on his feet he feels like hes swaying even if he doesnt look like he is he gets agitated easily
I wonder too...... So many of these things are similar...
that's frustrating.
Is that the same thing as small vessel disease of the brain?