← Return to Acute myeloid leukemia (AML): What can I expect?

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@loribmt

Hi @ccleschats. Thanks for clarifying what meds your husband is/was taking. ☺️ He wasn’t treated with Decitibine but he was on the Venetoclax which is important for keeping the AML cells under control for @kristenwhittle’s mom least at this point. I was thinking it would give her some positive news about how well it can work. I’m hoping her mom gets into remission and the Venetoclax helps to keep her there. I think their goal right now was to get treatment started.

These newer targeted meds for mutations are really amazing. I’m happy your husband is able to get one directed at his IDH1 mutation to keep those cells from replicating. I’m always curious about the meds people take, is he having any side effects from his new meds? Also, what’s his schedule for taking these? Is it monthly, weekly?

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Replies to "Hi @ccleschats. Thanks for clarifying what meds your husband is/was taking. ☺️ He wasn’t treated with..."

He is taking the TIVSOBO daily until it doesn't work. Then the plan is to switch back to Venetoclax. He's getting VIDAZA IV 7 days every 28 days.

Because he is doing so well, the next bone marrow aspiration won't be until after round 3 of chemo. Chemo starts again 10/3 which is when he sees the doc, has CBC.

He has had no side effects so far.