Hi@colleenyoung. My blood pressure and cholesterol are under control. I have been put on Pletaal to thin my blood. I see a dietitian and I have a personal trainer. I also do brain training exercises. I have been doing all this before my diagnosis. <br><br>I see my neurologist regularly. The next appointment is 2nd June. Apart from that I seem to be just waiting for my dementia to come. It seems to be a death sentence. <br><br>@beck<br><br>

@beck - How was your appointment with the neurologist last week?

My next appointment is July 6th. I think that the next steps will be to take more tests to see what's going on. They will talk to me about options and maybe have some ideas for headache pain other than aspirin. Hopefully they will have some ideas about meds for seizures.?

I have severe white matter disease also. I had no idea until I got a concussion in a golf cart accident. A brain scan led to an MRI which then led me to Mayo Clinic. I am 68 years old an extremely active. I teach and interpret sign language and am in a band at church. Since my diagnosis I started on a fat-free vegan diet and started learning the ukulele and Spanish. I don't feel like this diagnosis is a death sentence bur rather a new way of looking at my life. I do more, not less. I love more, not less. I want to start a blog about this because so many people do see it as a death sentence when really none of us have a guarantee that our lives won't end TODAY on our way to the store or crossing the street.

I plan on living the dickens out of my life, however long or short it may be. My husband and I have set upon upgrading our home to be a safer place for me and a nicer one. We moved my office into the Florida room so I can look at my newly landscaped back yard while I work. I wonder why I did not always live with this new improved attitude toward life!

I got back to Mayo Clinic in November or December and I'm planning to knock their socks off with my cognitive testing. I know this white matter will catch up with me sooner or later but in my 'in-between' time, I'm living life.

Good luck and may God bless us all!

Nancy

Welcome to Connect, Nancy (@nancywootten).
Somehow I missed your first post on Connect. What an entry. You're attitude and actions are admirable, and we're glad you're here.
Am I understanding correctly that you will be returning to Mayo Clinic in November or December to redo some of the cognitive testing that you did at your first visit? In addition to grabbing life by the tail, enjoying it and keeping up with work, are you also doing specific cognitive exercises? Or is that unnecessary with your level of activity?

Hi Coleen!

All the neurologist I talked to at home and Mayo said a no fat diet was best but that it was not sustainable. They just don’t know me very well at all! I’m a fat free vegan Natzi!! They also suggested another foreign language so I am learning Spanish. Music was suggested so I am learning ukulele. It is a blast. I even joined a beach ukulele group. It’s been a year and I feel no different at all. Just saw local neurologist and I passed all his cognitive tests. That was very exciting for me. I’m living life!!!!