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Interstitial pulmonary fibrosis

Lung Health | Last Active: Sep 2 9:03am | Replies (58)

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@ch47

Just had a minute to read over our great discussions…
Just a follow up, my husband is still doing well on the Ofev with no side effects, except our thinner wallet.
He had his third liver test about a month ago, and since we didn’t hear from the doctor, praying it was a good result and will discuss future testing when we see her in about another month.
My asthma breathing test was the best ever, and I credit a pelvic pt for teaching me how to breathe properly.
I think of all your stories and the decisions you have made. I would love to hear back how everyone is doing or if you have any new information?
Best to all,
ch47
Ps heard that my Breo, which just put me in the donut hole, has come out with a generic! My insurance company wasn’t having it, but when I need refills will ask my doctor to write for that…

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Replies to "Just had a minute to read over our great discussions… Just a follow up, my husband..."

Glad to hear things are going well for you both! As for me I'm still holding off on the Ofev. Recently someone wrote in about Saracatinib and how it sounds like it is working well for IPF. I may write to my pulmonologist and see what she thinks about it. I see her again in January but I'm not sure if I should wait that long before starting something. I had to quit my job but I'm getting some disability benefits for now. It's been a rather stressful year so it's hard to make decisions sometimes.