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DiscussionI have Cerebral Small Vessel Disease: How are you coping?
Stroke & Cerebrovascular Diseases | Last Active: Oct 1 5:38pm | Replies (144)Comment receiving replies
Replies to "I'm a 68 year old female oriental. I have been falling in recent years. Slow to..."
I don't think small vessel disease of the brain is well understood and it is difficult for any doctor to prepare one for what to expect. Symptoms occur due to changes to different parts of the brain so vary from one person to the next. Dr Michael Zeineh of Stanford University has been in the news recently about a relationship between Chronic Fatigue Syndrome and White Matter brain changes. Keep in mind that brain changes are more extensive in some patients more than others. Hopefully those with less will live to learn bio markers are confirmed that will lead to treatment. Presently my research has not turned up much other than controlling cholesterol, Blood pressure, thinning blood which is basically stroke prevention. Best to all.
Here is information about Dr. Zeineh's research that @caregiver49 refers to
"Study finds brain abnormalities in chronic fatigue patients" https://med.stanford.edu/news/all-news/2014/10/study-finds-brain-abnormalities-in-chronic-fatigue-patients.html
I've been diagnosed with Cavernous Malformation of the right temporal lobe. I had a MRI because I had severe headaches, some falling with black outs with weakness afterwards. I go into Mayo soon to find out more about it but wondered if anyone has heard of this? It seems to be kind of rare and sometimes inherited.
It is a progressive dieases and there is no treatment for it but if it is in the early stages there are changes you can make to slow it down i have been livi g with the effects of it for a few years now my husband has it
I agree basically doctors cant tell you want to expect because they dont know themselves
What are some of the changes I can make? I'm afraid I'm probably not in the early stages but it's taken quite a while for anyone to send me for a MRI.
My husband has small vessel diease of the brain and i agree dictors cant really tell you what to expect some days are worse than others but all days are challenging
Hi,<br><br>I've had brain and neurological diseases all my 77 years, including 3<br>TIA's. Your MRI will likely in conjunction with an Electroencepliagram or<br>even vidio monitoring help determine a prognosis that your doctor can<br>explain.<br><br>One thing, (most important) that I learned at Stanford, U.C.L.A. and<br>regular research was "how to control and balance items from anxiety,<br>depression, speculation, and worry. Since I went through 4 stages of<br>epilepsy with migraine headaches, this information allowed me to live my<br>life, obtain my education and employment, and now be retired. The change I<br>found was "when something is constantly on your mind and is worrisome find<br>a way to get rid of it." Play a game, computer or family and friend; read<br>a book, change television channels, watch a CD movie, or take a walk."<br><br>Doing those things have an ability to change the path of your thought<br>(which can be depressive and aniety filled) to something else. Because if<br>your walking you are looking where your walking, if your playing a game<br>your thought is often on the game taking away your worries and letting you<br>start fresh after the game.<br><br><br>Kay<br>