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MGUS and Chemotherapy

Blood Cancers & Disorders | Last Active: Sep 29, 2023 | Replies (17)

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@kayabbott

They have you on chemo with a negative biopsy? Are the meds for symptoms associated with MGUS? I collect autoimmune diseases (not a fun hobby) but I can limit them with diet (celiac), exercise, and getting enough sleep (controlling stress). I do a lot of crafts to maintain coordination in my hands, legs (neuropathy). My neuropathy is not associated with pain so it is just irksome. I take tumeric/black pepper in case that helps slow MGUS progression and I got a Reclast infusion for osteoporosis (but also may help with calcium retention and MGUS). Reclast makes me ill for a few days, but it lasts for a couple of years.

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Replies to "They have you on chemo with a negative biopsy? Are the meds for symptoms associated with..."

Happy Friday! Yes….steroids helped, specifically for the kidney failure, but after the tapering off of them I’d have another episode. So oncology decided to try chemo and antibody treatment because keeping me on steroids would cause other medical issues. So far, the side effects of the chemo have been manageable….my fear is if this doesn’t work what would be left to try. I’m glad your treatments seem to be working for you, especially the natural regime you follow. Perhaps I’ll look into that was well…..