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Immune Thrombocytopenia Purpura (ITP): What helps?
Blood Cancers & Disorders | Last Active: Dec 27, 2024 | Replies (181)Comment receiving replies
I was diagnosed in 2017. What helps me most with living with TTp is to find a support group or family members to discuss fears, treatments, labs results and day to day conversations to ease the unknowing. I juice, eat plenty of vegetables and fruits. I also take multivitamins, iron, Omega 3 fish oil and eat plenty of salmon and chicken. Will occasionally eat a steak for the iron. I also walk and exercise and lastly, I pray for complete healing. TTP is a rare blood disorder and you have to help your blood to stay as healthy as possible.
It can be scary….but your not alone.
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My latest lab results showed that my Adams 13 had droped and may have to start Rituxan. 8 rounds of Rixtuxan usually helps my numbers stabilized for at least a year. I usually can tell when my Adams 13 drop, I get really fatigued, and loose motivations, like cooking, reading and sometimes TV! Just know, your not alone on this journey. This is a great support group, that gathers people with Ttp.