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Liver transplant - Let's support each other
Transplants | Last Active: 2 days ago | Replies (1617)Comment receiving replies
Hi @nrbecerril, I'd like to add my welcome. I moved your intro post to this existing discussion:
- Liver transplant - Let's support each other https://connect.mayoclinic.org/discussion/liver-support-group/
I did this so that you can easily connect with many other liver transplant members like @kandidubrall @rosemarya @sg3 @katebw @myfablife @kathycaudle @athenalee @gaylea1 and more.
I'm sorry to hear that 7 months after liver transplant you're dealing with belly issues as well as temperature issues and swelling in your legs. Having rheumatoid arthritis sounds like it might complicate matters for you. I'm sure you've talked to your transplant team about these things and now you just want to connect with other liver transplant recipients to know you're not alone. What has your transplant team shared with you? Can you describe the "wierd" feeling you have in your belly?
Replies to "Hi @nrbecerril, I'd like to add my welcome. I moved your intro post to this existing..."
It feels like a dull pain. It could be muscles, scar tissue but everytime I carry 15lbs or more I feel like something will pop. Yesterday my RA doctor said my RA isn't acting up and he suspects it's this weird phenomenon that happens with Trac. That gives you a lot of severe pain. Has anyone experience this???
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@nrbecerril I can relate to some of what you’re sharing. I had a liver transplant almost 2 years ago. My belly still feels strange sometimes- the scar tissue, the swelling, sometimes I get a weird sensation that something is shifting around- like muscles and scar tissue. For a long while I couldn’t wear blue jeans because the material bothered my belly scars etc. All is better now but still in evidence. I can wear jeans but by days end they’re bothering me. Even now my belly is lumpy and uneven but gets better over time.
I used to have a lot of swelling post transplant (leg swelling) and they prescribed diuretics and ordered daily walks. Walking after a transplant seems to help with just about every aspect of recovery.
I am sorry you have RA with flare ups- that adds another dimension. I have ulcerative colitis, another autoimmune inflammatory disease, and struggle with flare ups much more that first year like you. By now this has also eased.
I’d send you a picture of my belly to reassure you that you are certainly not alone, but I’d scare everyone off of this site!!