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Husband with POEMS Syndrome

Caregivers | Last Active: Jan 17 9:06pm | Replies (24)

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@becsbuddy

@shaylarod Welcome to Mayo Clinic Connect and I’m so glad that you found us. You really have a difficult task on your hands. Let’s see if I can help and I’ll also find some members who can help you.
1. Get an appointment with the social worker at the rehab facility as soon as possible. Ask if she is able to delay his discharge for 1-2 weeks while you learn what you need and while the house is set up. Also ask if there are social workers in the community that you can make contact with.
2. Ask if the rehab facility has a ‘home inspection’ team who can come out and evaluate your home for safety. Also ask if they have training sessions for you to learn all you need to safely move your husband. Do you have the right equipment for him. The facility should be able to help with all his discharge plans, including if you will need assistance.
3. Community help: if your friends and family want to help, meals, errand, and child care would be most helpful. If home changes do need to be made, maybe a friend could start a Go Fund Me request for you.
I’m sorry, I think I’ve just overwhelmed you! Please ask more questions when you think of them.
Do you have any help right now?

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Replies to "@shaylarod Welcome to Mayo Clinic Connect and I’m so glad that you found us. You really..."

@shaylarod were you ever able to get assistance from the rehab facility or a social worker as I mentioned in my previous post? I certainly hope all is going well for your family. Becky