← Return to Rheumatoid Arthritis (RA) - Introduce yourself and meet others

Discussion
Comment receiving replies
@lisajade4mayo

I was diagnosed with RA after my second covid vaccine. I’m a couple years older than you. Athletic, fit. To painful and frail. I saw someone who hadn’t seen me in a year and they asked me “do you know where I can find Lisa?” A close friend said that she has watched me deteriorate. I tried to keep pushing. I have tried low dose prednisone, methotrexate and then humira. A few other less invasive meds. I’m taking narcotics to be able to move. I lost 15 pounds without trying and I was already lean. Currently on an anti inflammatory diet. Have been since December. I have no appetite due to the pain so it’s not hard to be on the diet. Because I was “normal” lol prior to the vaccines, my next step is to find a physician who is treating and studying long vax, vaccine injuries and long covid. I have been advised not to get boosted. I’m afraid it will do me in physically. I’m miserable. It’s hard for people to understand because other than being extremely underweight and unable to make plans, no one understands the pain and exhaustion involved. I got Covid earlier this year. No one believed me in a joking way because I mask at the pharmacy and have only been around people outside. I was put on paxlovid. I felt cruddy due to covid, but my RA symptoms greatly improved. It was oddly good. Came right back when I finished paxlovid. I have to say that the paxlovid kept the covid out of my lungs. My fever was gone within 24 hours, but I was just flattened. Another woman in the forum had the same experience. I will definitely post anything and everything that I learn. I’m a tough cookie with a high tolerance for pain. This is really hard. I get random rashes. A joint will blow up out of nowhere, lessen in severity of inflammation and then be ruined. Best to all dealing with this. I never imagined this happening.

Jump to this post


Replies to "I was diagnosed with RA after my second covid vaccine. I’m a couple years older than..."

Wow, you have been on a rough journey. Maybe ask your pharmacist what is in Paxlovid that would help you long term.

I am on hydroxychloroquine. It took 12 weeks to kick in but I am not prowling in pain when weather changes come through anymore.
Mediterranean/paleo diet. Fish oil supplements help. 2240 mg. Good multi vitamin. Collagen powder/probiotic. /100mg coq10.

Good Luck! I had horses for years. So sorry you are giving your riding up.

@lisajade4mayo. Welcome to Mayo Clinic Connect. I sure hope the members here will be able to help you. I honestly don’t know what to say about your condition. You’ve been to Stanford U. Hospital and no one was able to help you? Did you see an immunologist or a rheumatologist?
If you think that The Mayo Clinic would work for you, here is the web link:
https://mayocl.in/1mtmR63
Have you been to a long covid clinic in your area?