1. < Neuropathy

Seeking List of Treatments

Posted by bobc2 @bobc2, Sep 18, 2023

Does anyone know of a list of meds tried/used by doctors for idiopathic polyneuropathy? So far doc has said 200mg 4/day Magnesium Glycinate, 600 mg 2/day Alpha Lipoic Acid, and 100 to 300 mg Gabapentin at bedtime. My symptoms have rapidly increased in the last 8 weeks.

Interested in more discussions like this? Go to the Neuropathy Support Group.

Mentor
John, Volunteer Mentor | @johnbishop | Sep 18, 2023

Welcome @bobc2, I'm sorry to hear your symptoms have rapidly increased in the last 8 weeks. The Foundation for Peripheral Neuropathy has a list of treatments here - https://www.foundationforpn.org/treatments/, along with a list of commonly prescribed medications for nerve pain here - https://www.foundationforpn.org/wp-content/uploads/2016/10/Medications-Updated.pdf.

Have you discussed the increase in pain since starting the treatment with your neurologist?

REPLY
1 reply
SusanEllen66 | @SusanEllen66 | Sep 18, 2023

@bobc2 hi Bob
I promise you that everyone here understands what you are experiencing.

If you can take more Gabapentin, it should help. That and Lyrica are the only drugs that can help with the pain of polyneuropathy.

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1 reply
tomm547 | @tomm547 | Sep 19, 2023

I am on the max dose of gabapentin (3600mg) and am also ramping up to 60 mg of Tuloxitine (Cymbalta). I still have neuropathy symptoms in my feet and ankles but the meds do help.

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1 reply
readyman1 | @readyman1 | Sep 19, 2023

I’ve started taking NueroPure 2x daily. Use Absorbine Jr Horse linament at night.
Works better for me than ANY drug!!
Will probably always have numbness, but I have 0 pain.
Able to walk, and all other activities (swimming is best) and drive just fine (a five speed manual).
God Bless you on your journey!!

REPLY
2 replies
bobc2 | @bobc2 | Sep 19, 2023
In reply to @johnbishop "Welcome @bobc2, I'm sorry to hear your symptoms have rapidly increased in the last 8 weeks...." + (show)
@johnbishop

Welcome @bobc2, I'm sorry to hear your symptoms have rapidly increased in the last 8 weeks. The Foundation for Peripheral Neuropathy has a list of treatments here - https://www.foundationforpn.org/treatments/, along with a list of commonly prescribed medications for nerve pain here - https://www.foundationforpn.org/wp-content/uploads/2016/10/Medications-Updated.pdf.

Have you discussed the increase in pain since starting the treatment with your neurologist?

Jump to this post

Thank you John, I am very grateful.
Such good info. I see my neurologist tomorrow.
The websites focus a lot on pain. I don't have pain as much as loss of feeling and feeling/seeing small points of calf muscle and other muscles randomly pulse.
Any further thoughts?
Bob

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1 reply
bobc2 | @bobc2 | Sep 19, 2023
In reply to @tomm547 "I am on the max dose of gabapentin (3600mg) and am also ramping up to 60..." + (show)
@tomm547

I am on the max dose of gabapentin (3600mg) and am also ramping up to 60 mg of Tuloxitine (Cymbalta). I still have neuropathy symptoms in my feet and ankles but the meds do help.

Jump to this post

Thank you, Tom.
How long did it take you to get to 3600 mg dose?
Bob

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1 reply
SusanEllen66 | @SusanEllen66 | Sep 19, 2023
In reply to @readyman1 "I’ve started taking NueroPure 2x daily. Use Absorbine Jr Horse linament at night. Works better for..." + (show)
@readyman1

I’ve started taking NueroPure 2x daily. Use Absorbine Jr Horse linament at night.
Works better for me than ANY drug!!
Will probably always have numbness, but I have 0 pain.
Able to walk, and all other activities (swimming is best) and drive just fine (a five speed manual).
God Bless you on your journey!!

Jump to this post

@readyman1 I was curious about the NeuroPure so I did a search for a non-sponsored, secondhand, unbiased review and couldn’t find one. Each site was basically a promotion for the product so the “reviews” were, of course glowing.
I am very happy that it works for you. I would like to see second hand reviews. If you know of a reputable site I can look at, please let me. Thank you.

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bobc2 | @bobc2 | Sep 19, 2023
In reply to @SusanEllen66 "@bobc2 hi Bob I promise you that everyone here understands what you are experiencing. If you..." + (show)
@SusanEllen66

@bobc2 hi Bob
I promise you that everyone here understands what you are experiencing.

If you can take more Gabapentin, it should help. That and Lyrica are the only drugs that can help with the pain of polyneuropathy.

Jump to this post

Thank you, Susan Ellen

REPLY
bobc2 | @bobc2 | Sep 19, 2023
In reply to @readyman1 "I’ve started taking NueroPure 2x daily. Use Absorbine Jr Horse linament at night. Works better for..." + (show)
@readyman1

I’ve started taking NueroPure 2x daily. Use Absorbine Jr Horse linament at night.
Works better for me than ANY drug!!
Will probably always have numbness, but I have 0 pain.
Able to walk, and all other activities (swimming is best) and drive just fine (a five speed manual).
God Bless you on your journey!!

Jump to this post

Thank you Readyman1 and may God bless you.
BobC2

REPLY
Mentor
John, Volunteer Mentor | @johnbishop | Sep 19, 2023
In reply to @bobc2 "Thank you John, I am very grateful. Such good info. I see my neurologist tomorrow. The..." + (show)
@bobc2

Thank you John, I am very grateful.
Such good info. I see my neurologist tomorrow.
The websites focus a lot on pain. I don't have pain as much as loss of feeling and feeling/seeing small points of calf muscle and other muscles randomly pulse.
Any further thoughts?
Bob

Jump to this post

Neuropathy can have a lot of different symptoms and along with other autoimmune related conditions. Wondering if the twitching (muscles randomly pulse) might be benign fasciculation syndrome (BFS). There is another discussion where members have shared information that might be helpful:

--- Peripheral Neuropathy and benign fasciculation syndrome.
https://connect.mayoclinic.org/discussion/peripheral-neuropathy-and-benign-fasciculation-syndrome/

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