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retreat1 avatar

Help with elevated Titanium in TKR. Any others?

Joint Replacements | Last Active: Sep 7 5:49pm | Replies (14)

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Profile picture for Jennifer, Volunteer Mentor @jenniferhunter

@retreat1 I'm sorry you are having such a reaction to metals and that is really tough to live with. I also had a reaction to titanium alloy in surgical plates after I fractured my ankle. Fortunately, I was able to have those removed and it solved the problem. I had skin pigmentation getting darker, throbbing pain and chronic hives in massive patches on my body that began at 6 months after the ankle fixation. I reacted to metals from pierced earrings and had to give that up years ago. I have been a patient of doctors in the field of environmental medicine and there is a practice in Texas that treats patients for implant sensitivity. If you look at this discussion with another member, I shared this information with @moprea . If you follow the discussion, this patient is working with the Environmental Health Center in Dallas and having remote followups by video conference. https://connect.mayoclinic.org/comment/860212/

I hope that this information can give you some hope for improving your situation.
Jennifer

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Replies to "@retreat1 I'm sorry you are having such a reaction to metals and that is really tough..."

Thank you Jennifer for your response.
Yes, I have followed the discussions started by the member on the Center in Texas. I made a preliminary call also. What I am unsure of with the protocols, is , with artifacts ( parts of metallic implants ?? )in my body, would my health and safety still be compromised ,even with treatments. I have not yet gotten a definitive answer. At a loss now, I decided to reach out to this kind community.

Hi Jennifer...per @sueinmn
Where would I find the Comprehensive Allergy Testing?
Would this be different from my Comprehensive Orthopedic Metal Testing in Germany? Thank you.
I also have search results from ACAM.

How high is your serum Titanium? I have had 15 revisions since my initial hip replacement, due to metalosis (cobalt, chromium), implant loosenings, multiple infections/wash outs etc. I now have elevated titanium! Taking my implants out is not an option because there are not any other implants in the US for them to use.
We live in Maryland and I have been looking for a doctor who can filter the metal out of my blood, to no avail. I am now 67 and had my initial THR at 40. I have many titanium metalosis symptoms. What can you tell me about the place the deals with these issues in Texas? I have family and hour from Dallas and wonder if those doctors could help me. I read they are looking into making implants from carbon fiber in the UK. Thankyou for reading my story,
Marji