Prostate cancer symposium

Posted by rxharleydude @rxharleydude, Sep 13, 2023

FYI to those that may not know, there is a Prostate Cancer Symposium being held at Mayo clinic, Jacksonville, Florida this Saturday, September 16 from 8 AM to 12:30 PM. Breakfast and lunch will be available as well. wife and I have signed up for it and are looking forward to a lot of new and useful information to come from it.

Interested in more discussions like this? Go to the Prostate Cancer Support Group.

Will the symposium be available online on Saturday or later?

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Is it possible to join through a webinar.
Thank you,
Philnob

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@philnob

Is it possible to join through a webinar.
Thank you,
Philnob

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I’m not sure of that. Whatever’s available should be advertised on the link that I sent yesterday that you should have access to.

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If you click on the link, it gives you places to put your name address, etc. and then implies that you will have access via livestream. I don’t think it’s a webinar but then I’m not very tech savvy so don’t depend on my opinion.

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Will be attending also. Hope to learn more!

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@jc76

Will be attending also. Hope to learn more!

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Amen to that (learning more) brother!

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Attended the Prostrate Cancer Education Series on Saturday September 16th 2023 at Mayo Clinic Jacksonville.
Was an outstanding presentation with many excellent speakers. The breakfast (sit down) and take away lunch was great. Dr. Tan (facilitator) was great and brought some humor. The social work presented by Tanya Thomas was also outstanding and you could really see she was a very caring provider in her specialty.

I hope Mayo Clinic Jacksonville had many more like this. Since the moderator monitors our posts I hope she passes on how outstanding this education series was and the thanks that all of us that attended or view appreciated it.

I hope Mayo Jacksonville will do more. I think there were maybe a hundred (don't really know) or so inside auditorium and probably as many on line. I do know they ran out of seating at tables and rear of auditorium attendees had additional seating.

I would have liked to have seen more discussion on radiation therapy as it seems a lot of us have had it. Mayo Jacksonville does not have proton radiation therapy like Rochester and Phoenix do. The system they do use is suppose to be very good but I chose to have the proton radiation done based on research. I would have like to have seen more information on the difference between the two and the pros and cons of each.

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I, soundly agree with “jc76” comments regarding the symposium! It was well presented & very very good!
Just an FYI, Mayo Jax is in the process of getting a proton accelerator. It will be housed in a building next to the Mangurian building there on the campus.

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@rxharleydude

I, soundly agree with “jc76” comments regarding the symposium! It was well presented & very very good!
Just an FYI, Mayo Jax is in the process of getting a proton accelerator. It will be housed in a building next to the Mangurian building there on the campus.

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rxharleydude, I was informed some time ago about the new cancer center would have proton radiation. However my oncologist/radiologist stated would not be used for prostrate cancer. I did not agree with the comment and related that both Phoenix and Rochester have proton radiation treatment for prostrate cancer and offer varied and robust treatments along with promoting the benefits of proton radiation versus photon.

I even went so far to contact patient advocacy who contacted radiology/oncology and the reply was they don't know yet whether would offer prostrate prostrate cancer treatments . If that is the case the oncologist/radiologist should be briefed to tell patients if they inquire that Mayo Jacksonville Radiation/Oncology has it "under review and study."

I think Mayo Jacksonville will offer it as the benefits of proton versus photon are widely promoted by almost every major provider including Phoenix and Rochester Mayo Clinic.

It is why I wished the radiologist had stayed to answer some questions. Proton major advantage is the radiation does NOT pass through body but stops at the area/spot you are treating. Proton radiation had more direct beams and is also used in many other cancers because of the precise radiation beam it can provide.

Problem is studies that have been done have been 5 year studies so the overall long term benefits, possible decreases in secondary cancers and long term side affects have not been published. UFPTI did received a federal grant (25 million) and are doing such a study now on proton radiation long term study. I think they have 10,000 (but not sure on this) patients they are following.

Hopefully our education section will continue such events as for me they are outstanding. I would like to see prior to events that questions could be submitted (prior to event) for speakers to answer. I think you would get a lot more questions that way.

I do and understand the questions cannot be personal but general. Some of those could have been the proton versus photon radiation pros/cons and plans for the new cancer center.

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