Thank you. I’ve actually been praying and seeking the Lord but sense nothing. I’ve been blessed to have many praying for me to no avail. I don’t understand why this is happening. I’ve been doing my best to try and accept this because it doesn’t appear to be any medical help or answers available. I’m trying to get strong enough to have some sort of life, but it’s exhausting and discouraging. Insomnia and night sweats are one of the the worst parts. That’s when the depression tries to set in, but by accepting this and trying to learn from it, I'm able to at least get a little emotional relief.
I wish more funding and research was available to research this. It’s real and I know many suffer with CEBV.