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Off Prednisone for PMR

Autoimmune Diseases | Last Active: Sep 21, 2023 | Replies (15)

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@floridabonnie

I was diagnosed with PMR in March of 2021. I started on 20 mg prednisone a day at that time. By June 1 of 2023 I had tapered down and I took my last dose of 1/2 mg, of Prednisone. The first 2 weeks were hard, pain and stiffness, but nothing that was bad enough to get me to go back on prednisone. I was starting to be able to sleep at night again. I still have heavy sweating at times, and once in a while difficulty sleeping. But I am a 74-year-old female and expect some stiffness and restlessness. I have not yet regained all my energy from before PMR and don't know if I ever will. I am hoping to get completely well and not feel the effects of the illness anymore. I tend to get out of breath more than I ever did before and still have fatigue. Does it ever completely go away?

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Replies to "I was diagnosed with PMR in March of 2021. I started on 20 mg prednisone a..."

Good for you, Bonnie! I don't know the answer to your question but you are my role model for tapering off. Thank you.