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Does anyone else have MGUS?

Blood Cancers & Disorders | Last Active: Sep 19 12:31pm | Replies (818)

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@fayeraye

I am so very sorry for what you went through with your husband. That should have never happened. My pcp never explained anything to me. He just kept running test after test because I kept getting abnormal numbers. I know I had an abnormal on IgM. Then he said I had MGUS and I will be re-tested every 6 months. So , I went to the internet.

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Replies to "I am so very sorry for what you went through with your husband. That should have..."

You're on the right path. Time to advocate for a specialist to provide you with knowledge, monitoring and support. There must be a myeloma site that can help with your search for the specialist in your region. Sometimes you may have to travel a wee bit, but worth the effort. One of our Mentors on this site may know of such a place.