This is a frustrating virus. I was diagnosed in March 2023 but suspect it’s been around a while due to the chronic fatigue I’ve experienced since I had mono 40 years ago. Glands would swell up occasionally, but the fatigue was the worst part.

I’ve seen Functional Medical provider (who tested and diagnosed this). My PCP also tested and I saw infectious disease who tested. No one has been able to help or quite frankly, seems to care.

I’m trying to understand what this virus is and why so many people are affected by it and why no good treatments are available. I’m at a point now where I’ve lost a lot of weight and had to retire early due to worsening brain fog and fatigue. I also developed severe insomnia and get night sweats. I have a poor quality of life. I do all the right things to try and beat this. I cut out all alcohol, caffeine, processed foods, sugar, I take supplements, Vit C infusions when I can afford, take Lauracidine, acupuncture. I don’t take any medications. Not even Tylenol. to try and help my body heal. Nothing works.

I’m part of some forums where I read about others going through the same thing. They get diagnosed with Chronic Fatigue and Fibro which is what I’ve been diagnosed with which seems to mean nothing. All mystery illnesses with no cure that take over and wreck your life. Things also got very bad for me after I contracted Lyme about 3 years ago. Lyme exasperated my symptoms, but Lyme also seems to mean nothing to doctors. All mystery illnesses.

Jump to this post