I am sorry you have sarcoid. My husband has it and was diagnosed in 2001 when he needed an X-ray to complete an adoption in China. He had been treated for asthma for years. Switched doctors! He is seen at UMASS. His is inactive, but he has scar tissue and one collapsed lobe. He was not a smoker, but we lived at chimney level in Berlin, New Hampshire for 15 years. His breathing is terrible. I will tell you it is best to have it in your lungs rather than other organs. A neighbor had it as well ( makes you wonder about our environment). He had it in many organs and has passed. He went from being a healthy young man to looking like a thousand year old man in a matter of months. I had never heard of sarcoidosis till my husband and neighbor were diagnosed with it. My husband is 77 now. It is possible to live a regular length life with it in your lungs. It is no fun but better than having it in other places. He is checked yearly. Wishing you well. Irene5