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Neuropathy | Last Active: 6 days ago | Replies (95)
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nothing has helped my SFN pain either. trileptal helps w burning in finger tips, but notwhere else. The pain is relentless and affecting my heart rate, it is low. A dr told me to find cause of SFN to stop it. I dont know the cause , suspected by dr i have a virus. I never test positive for covid active infection, only test positive on blood tested antibodies. I dont know what the virus is that is causing SFN. I dont have diabetes, never alcohol drinker. Getting tingling in my face
Replies to "nothing has helped my SFN pain either. trileptal helps w burning in finger tips, but notwhere..."
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What’s causing our SFN. That’s the question. But isn’t that the doctors job to answer. I’m seeing my forth neurologist in a couple of months. I’m skeptical, but hopeful.
Everyone’s SFN seems different. Me? No pain above the waist. But my feet and legs are ALWAYS in pain. My feet either feel frozen, on fire, or like all the bones are broken. Like all the tendons and ligaments are stretched out and about to snap. It’s forever changing!!!! Even hour to hour.
Finding the cause of it seems like a logical question. I’ve been trying for 5 years!!!! Beginning to think I’ll never find the answer. If I do, I’ll get it out there for others who may share my diagnosis.