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Pulmonary Sarcoidosis: How are you dealing with it?

Lung Health | Last Active: Dec 5 12:30pm | Replies (127)
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@454june3736

I was diagnosed with Sarcoidosis on 5/30/23. I have some granulomas in my lungs and due to granulomas in my kidneys I had kidney failure.
It is quite the journey. I have been on Prednisone now for over a year. I have three more months and then I am done.
I struggle with being tired a lot of my time.

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Replies to "I was diagnosed with Sarcoidosis on 5/30/23. I have some granulomas in my lungs and due..."
Colleen Young, Connect Director | @colleenyoung | Sep 28, 2023

Welcome @454june3736. Fatigue is a challenge. Will you taper off prednisone? What are the implications of kidney failure? Dialysis?

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shar1120 | @shar1120 | Dec 27, 2023

Hello. Curious how they found granulomas in your kidneys ? Did you have symptoms and then a kidney scan.?
I have not been on prednisone yet but since I was tested for everything else and all is negative, I assume it is just inflamation that prednisone would help
Hope you are doing better now

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