treatment resistant chronic sinusitis

@carterbeauford

Additional question from my above question-

Did anyone ever prescribe a compounded nasal saline rinse w/ steroid besides the spray?

I think our fellow member @johnbishop may have some experience with that.
John, can you help @carterbeauford and @seekinginfo ?
Sue

Thank you for the tag @sueinmn. @carterbeauford and @seekinginfo, a few years ago I was considering septoplasty due to having a deviated septum and nasal congestion most of my adult life. After my Mayo ENT discussed the risks associated with the surgery I decided to go with his recommendation of a proprietary Mayo Clinic nasal spray which I used for a couple of months along with twice daily nasal rinse. My ENT thought my problem was due to rhinosinusitis so prescribed the nasal spray. After my second RX ran out, I continued the twice daily nasal rinse and it pretty much took care of my congestion issues with the blocked nasal passage.

The 3 ingredients in the Mayo proprietary nasal spray are Mometasone to reduce inflammation, Ipratropium to reduce nasal drainage and Diphenhydramine which is an antihistamine to help reduce nasal drainage. The product description on my prescription is MOMET 0.033% – IPRA 0.02% – DIPH 0.02%. I think an ENT doctor may be able to write an RX but you may want to talk with your doctor and/or give the Mayo Pharmacy a call for more info.

Since using the proprietary nasal spray along with a twice daily nasal rinse, I've switched to using the SinuSonic Sinus Therapy – https://sinusonic.com/. Each device lasts about 6 months and is about the same as paying for the twice daily nasal rinse supplies. I was surprised at how well it has worked for me. Here's a study that I found on the device prior to buying one. I've used one for a couple of years now and it has pretty much cleared my congestion as long as I use it once or twice a day. I normally just use it before going to bed.
— A novel device combining acoustic vibration with oscillating expiratory pressure for the treatment of nasal congestion:
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7317541/
Hope this helps.

I made an appointment with an ENT at Cleveland Clinic who is also a plastic and neurosurgeon. I don't have any congestion on the right side and that's where most of the nerve pain is. Steroids have no effect on inflammation in my body and I already can't sleep from half the lowest dose of Wellbutrin for dopamine dysfunction.

Does the sinu-sonic help eliminate post nasal drip?

I think it might help but not sure. Each time I use mine I always blow my nose and loosen things up. Then I use the SinuSonic.

@carterbeauford -

I notice you refer to these issues as dopamine dysfunction.

Has anyone ever talked to you about just plain depression and what it means/feels like?

At the risk of sounding very straight forward but in a concerned way, if this is not addressed, it doesn’t matter what pain you chase or surgical modalities used.

Do you have anyone in your family who has suffered from depression or mood disorders?

I only ask because I’m wondering if you have anyone who’s close to you that can explain how real this is?

It doesn’t mean something anything is wrong with you.
I read through all of your threads and I find a commonality of trying to explain the why’s behind it all.

Sometimes things just happen and to get through them sometimes we need some extra help/support.

My sympathies...chronic sinusitis isn't fatal but is life-changing, for sure. My sinus issues began after I contracted CDiff -- after a hospital outpatient surgery, I feel sure. It's worsened over a decade-plus, getting so bad 2-3 years ago that my fourth ENT, head of the department, first did a balloon procedure, which did nothing, then an antrostomy to enlarge the maxillary openings. On the heels of that surgery, I contracted Covid for the first time. Things have gone downhill since then. 2023 was bad. I was sick at least half the year -- PND, maxillary pressure, gag coughing, fatigue, dizziness, body aches. It would come and go and come back again. I just had thorough blood workup. Turns out my IgG and some pneumococcal levels are somewhat low, meaning weakened immunity. So is that why my body is unable to shake this syndrome? On the other hand, it occurs to me that maybe the whole thing is Long Covid (dizziness was my big Covid symptom). I'll be seeing an immunologist soon for yet another opinion. Anyone else believe their sinusitis is a manifestation of Long Covid? Thanks for any input!

do you know how this helps if you have sleep apnea? i do. my machine has the water tub for humidity. but i still wake up with a stuffy nose or congestion. never both at the same time. either one or the other nostril. d 🏳️‍🌈

@danny5 I also have sleep apnea with a deviated septum. I had the humidity tank with my previous 2 CPAPs that I no longer have due to the recall - Dreamstation and Dreamstation Go portable CPAP. I stopped using the humidifier tank for the same reason. It seemed to make my congestion worse. I did like the heated hose which I no longer have because my bedroom gets a little cold in the winter and it effects the air I breathe more than my body.

I decided against surgery to fix the deviated septum after a long talk with my Mayo ENT doctor. He put me on a 3 month Rx of a proprietary nasal spray that I did in the morning and the evening which helped clear up my nose. He said my problem was caused by chronic rhinitis. After the Rx ran out I was able to treat the rhinitis with a twice daily saline nasal rinse for a little over a year. Then I saw an ad on the SinuSonic and decided to give it a try. They last about 6 months before you have to replace it which was almost as cheap as 6 months of daily nasal rinse supplies and it actually does help keep my nasal passages clear if I use it one or two times daily. Another plus for me is that it's much easier to do than the nasal rinse.

I think it probably does need a larger study. This was the first study (small) that I looked at which convinced me to give it a try.
-- A novel device combining acoustic vibration with oscillating expiratory pressure for the treatment of nasal congestion: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7317541/