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Small Fiber Neuropathy

Neuropathy | Last Active: Oct 3, 2023 | Replies (213)

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@butterfly9

Gm. Hard to say really. I have an auto immune mixed bag. Currently dx with sle, fibro Sjogrens and POTS which I am seeing occurring more in lupus/ Sjogrens warriors. I had the weakness down my right side for like a year. My balance was off. I would definitely address this issue with a neurologist and not be dismissed. Unfortunately with some of us.. another pair of eyes is needed. I was sent out to Johns Hopkins. To see a nuero rhuemy. They don’t have this where I live. I am trying to find the most resources since my only daughter also has been dx with Sjogrens.

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Replies to "Gm. Hard to say really. I have an auto immune mixed bag. Currently dx with sle,..."

Sorry to hear your daughter has also been diagnosed with Sjogren's. If you are looking for other related discussions for specific questions you might have the search function on Connect is pretty good. Just type in your search words in the search box at the top of the Connect screen to see a list. Here are the search results using "Sjogrens" - https://connect.mayoclinic.org/search/?search=Sjogrens++.

If you haven't already seen the site, the Sjögren's Foundation has a lot of helpful information: https://sjogrens.org/understanding-sjogrens/resources/brochures-resource-sheets