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Thrombocythemia and need neck surgery: Will surgery make it worse?

Blood Cancers & Disorders | Last Active: May 26 9:01pm | Replies (53)
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@arti4

@1995victoria, @bonnieshaffer
As previously stated, I have ET, I’m 70 years old, and am just on low-dose aspirin twice a day, until my platelets rise to 600. I generally feel good, other than some fatigue, and I’m very active-walk daily, aerobics, etc. However, I have all kinds of bone pain! And yes, I wonder if it’s arthritis or caused by the ET. Some of it is chronic (toes, ankles) but some of it is fugitive. Like one day, I can barely walk, due to bone pain in my leg, and I’ll wake up the next day and it’s completely gone! No one has attributed this to the ET, but I wonder…

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Replies to "@1995victoria, @bonnieshaffer As previously stated, I have ET, I’m 70 years old, and am just on..."
bonnieshaffer | @bonnieshaffer | Sep 16, 2023

I have pain in my cartilage and bones as well as stiff muscles and soles of feet. I have terrible osteoarthritis along with other problems in my neck.

Most pain is in the morning (hands, feet and ribs) and then it tapers off.

My Endocrinologist suspects an autoimmune connective tissue disease. Apparently, ET causes inflammation which can lead to autoimmune problems.

I'm sorry about your pain. Just another unwelcome visitor!

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