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Does anyone else have MGUS?

Blood Cancers & Disorders | Last Active: Mar 3 5:40pm | Replies (1163)

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Profile picture for ajbonett @ajbonett

When they first found my M-spike, I immediately asked a very good local oncologist friend about recommendations for a hematologist. He was very adamant that I should go to one of the major medical centers in our area. He said that the local docs are used to dealing with less rare diseases like leukemia & anemias, but not so much with MGUS/MM. There are many subtleties to understanding how all of the numbers relate to each other and you need someone who can do that.

My biggest issue right now is my ferritin levels. I will get an iron infusion at this next visit. Beyond that, I seem to be asymptomatic.

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@ajbonett hey there. I also have low ferritin and MGUS. My last ferritin level was 14. How did the iron infusion go? I’m looking at getting it, but am anxious to do anything with my blood right now. Thank you for any insight!