With tears in my eyes I thank you from the bottom of my heart for taking the time to write this as i read your inspirational journey. I am in Australia and 52.... i used to buy business' , build them up and sell them.... we have built three houses together on our own... been together since we were 14 and 19. We have 2 children and 7 grandies... however 8 years ago through much stress at the time i had shingles in my eye, ear, mouth, face and head. Talking to a professor in your country he said it most likely went down my spinal cord as well given the amount of Neuro Problems i now have. So had to bring our business home and learn how to live with Lupus Fibromyalgia, Neuro Auto Immune, I lost all of my hair with Alopecia (now grown back) and ended up with 17,000 ectopic heart thuds after my third covid shot .
My heart doc said i should be tested for Reynauds' freezing all the time..... but honesestly i haven't go the energy to add another title because as my Doctor said.... it doesn't matter how many titles there are... all you can do is treat the symtoms. So have come to the conclusion that we will probably have to down size earlier than we hoped (the grandies love being in the bush at grammy and pa's house ) just so financially my husband doesn't feel like he is working so hard then having to help do all the things i can't (i still look after the client side of things) .
I have since had shingles, a spur cut out of my spinal cord and a cage put over C567, Just had a full hip replacement and need to do the other because lupus is eating me away from the inside out , hardware in my big toes and honestly it just goes on and on. My life has gone from being so energetic to my brain contstantly thinking about how to manage and live day to day..... i truly need some help knowing how to train my brain from thinking about my medical life because that is all my life seems to be now.... to something else
I would be ever so grateful for your knowledge on how you achieved this because i am sure hubby is sick of hearing about it because i am sick of living it.
Don't get me wrong ..... I am on call for our state to help families and first responder's after suicide which in a way was helping my own mental health... because helping others actually stops my mind from being about my health. Given i have lost most of my immediate family to a ripple effect of suicide myself Dad, Stepdad and Brother... Then my son lost his best mate to suicide which then lead him to Ice addiction and we mostly bought up our grandaughter ......I have had to take a slight step back to focus on healing my body after my hip replacement a few weeks back.
I am so glad you found the love of your life and feel supported , I often say to hubby surely you would prefer to be with someone like i used to be .... because honestly he admits he gets easily frustrated and doesn't remember the things that i have to ask him to do now... because i can't do them myself anymore.
I hope sunshine stays in your days.... because my only way of thinking about this..... if some poor mum has to say goodbye to her children or grandchildren due to cancer ... then i am grateful not to be that person. There is always someone worse off than ourselves.
Looking forward to hearing how you are going and wish you the most perfect day
cheers Leanne