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Anyone still have pancreas pain while taking Lanteotide?

Neuroendocrine Tumors (NETs) | Last Active: Sep 20, 2023 | Replies (18)
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@hopeful33250

Hello @wolf359 and welcome to the NETs support group on Mayo Connect. I so appreciate you sharing your journey with NETs and the injections. I'm assuming that the injections you speak of are Lanreotide?

It's always great to have another perspective on how a reaction to a med can change over time. I see that the liver NETs are secondary to pancreatic NETs. How long ago were the pancreatic NETs diagnosed? I'm also wondering if you had any surgeries and/or embolizations?

I'm looking forward to getting to know you and learn more about your journey with NETs.

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Replies to "Hello @wolf359 and welcome to the NETs support group on Mayo Connect. I so appreciate you..."
wolf359 | @wolf359 | Sep 20, 2023

Hi Teresa,
Dx was in 2009 when I went to the ER with worse headache I ever had (turned out to be Pseudotumor Cerebrai). I had the Whipple surgery not long after. They discovered the liver NETs a bit later. I have been through 1 embolization (Theraspheres), Lutathera, Temazolemide/Cap (briefly) and way more recently, Lanreiotide shots.

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