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Thrombocythemia and need neck surgery: Will surgery make it worse?

Blood Cancers & Disorders | Last Active: May 26 9:01pm | Replies (53)
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@bonnieshaffer

I have ET with the JAK2 mutation as well as MDS.

I am taking 500mg of HU with baby aspirin as well.

The toes on my right foot are really aching! I don't know if it's the ET or arthritis!

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Replies to "I have ET with the JAK2 mutation as well as MDS. I am taking 500mg of..."
lynn22 | @lynn22 | Sep 16, 2023

Sorry to hear you are suffering. My fingers are now aching and I don’t have arthritis so assuming it is the ET having read about small and large bone pain. Fortunately it is not present all the time but I am a therapist and have had to give up massage as too painful, very annoying!

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tia50 | @tia50 | May 21 10:51am

Can you please tell me -What is HU?

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