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Does anyone else have MGUS?

Blood Cancers & Disorders | Last Active: Sep 19 12:31pm | Replies (818)

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@loribmt

Hi @fayeraye. First, a little bit about your new diagnosis from Very Well Health, which give a great explanation of this condition:
“Monoclonal gammopathy of undetermined significance (MGUS) is a medical condition that has no symptoms. It causes the production of multiple copies of an abnormal protein in your blood.”

Basically, when you had your blood tests at your physical your doctor noticed the presence of an abnormal protein in your blood called the M protein. For many people this doesn’t cause an issue but over time if too much of this M protein collects it can create some problems. But it can take a very long time for this to happen and in some people nothing changes and no treatment is required.

Having routine blood work as your doctor suggested every 6 months is a good way to keep an eye out for any possible progression. For now, it may be fine to stay with your pcp. But if there are any changes in the future you may opt to see a hematologist or hematologist oncologist. They specialize in blood disorders and seeing them would be the next likely step to take. There are different risk types of MGUS which can predict the likelihood of the condition to progress. So for that reason, it would be valuable to be with a specialist.

Here are 2 informational articles on MGUS.
https://www.verywellhealth.com/monoclonal-gammopathy-of-undetermined-significance-4771132
https://www.healthline.com/health/how-serious-is-mgus
I know getting a new diagnosis can cause a great deal of fear and stress especially when it feels so ‘out there’…like, is something going to happen or not!? The proverbial, “waiting for the other shoe to drop”. It doesn’t mean you live in fear from checkup to check up. Live life normally and try to stay away from Dr Google because that can just add anxiety. ☺️

Welcome to Connect! This is such a great community and I think you’ll find you’re not alone here. We have quite a few members with MGUS who will be more than happy to answer any questions you might have. You might enjoy exploring the 70+ other support groups we have in the forum and don’t hesitate to jump into to any conversation where your life experiences and journeys might offer support to someone else.
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Replies to "Hi @fayeraye. First, a little bit about your new diagnosis from Very Well Health, which give..."

I thank you for all this information you gave me. It’s very helpful. I think I’m going to get a specialist. I feel more comfortable.