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Does anyone else have MGUS?

Blood Cancers & Disorders | Last Active: Sep 19 12:31pm | Replies (818)

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@gingerw

@mguspixi25 My reply to you last night went somewhere, but not onto this forum!

Multiple myeloma has many different facets, and there is fortunately a lot of research going on at this time. A side note, I am on chemo for my case. It is my sincere intention to be available to support and assist others however I can, for as long as I can. In other words, be a PITA [insert laughing emoji here]

I will hold all good thoughts for you, that your situation does not morph in to Smoldering Multiple Myeloma.
Ginger

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Replies to "@mguspixi25 My reply to you last night went somewhere, but not onto this forum! Multiple myeloma..."

Not to worry - when that happens (especially after writing a nice long message!) I tend to think “oh well, maybe it wasn’t meant to be posted” 🙂
Yes I remember reading in another post of yours somewhere on the site that you’re being treated with chemo - I sincerely hope that you’re doing well with the treatment 🌺
I’ve read a lot about the current research and have actually reached out to some researchers to find out more…and I’m adding my name to trials registers to be a Guinea pig in future, regarding MGUS/MGRS investigations.
There’s a certain extra that people have to offer when they’ve been through/currently going through something challenging, and it certainly shows with your efforts..aka your determination and persistence to be a PITA here for everyone’s benefit 😄🙌🏻
Thank you for your kind holding of thought, however please don’t think a minute for me - SMM is nowhere near being a concern of importance, even if it does eventuate…I’ve had other things have a much greater impact on function/longevity, so to place it in context, it’s maybe a 4/10 on the ‘stuff for me to pay attention to’ scale.
I’m only focussed on what gets in the way of me doing things I need to do to survive; instead of putting any value into what the particular label is of the next function-limiting disease is. I’ve had various ‘bad’ pathology chopped out of my body from various places, and always refused chemo/radiotherapy, and my approach is to not use those methods unless it’s an experiment to help future patients.
I’ve clocked up enough hours on the operating table already, in the infusion clinics already, and in the waiting rooms of too many docs already, to want more of that if SMM comes along 🌺

Thank you for replying. I’m sorry you’re going through all this with the chemo. Sending Prayers your way. It’s nice that you are on here and helping others.