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Small Fiber Neuropathy

Neuropathy | Last Active: Oct 3, 2023 | Replies (213)

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@isc

I too have SFN. I have had it for almost 50 years. It a long time to get a diagnosis that matched my symptoms. I’ve tried several antidepressants, gabapentin and Lyrica, with no changes in my symptoms. I take Alpha Lipoic Acid, and I’m not sure it helps. But it’s so helpful to have a diagnosis after 45 years of fear and anxiety from not know what I have. I’ve made some lifestyle adjustments; primarily around the amount of time I can spend on my feet each day. Being on my feet for more than 4 hours a day is very painful. Otherwise, I’m good.

May you figure this out and find a plan that works for you.

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Replies to "I too have SFN. I have had it for almost 50 years. It a long time..."

Thank you so very much. It is helpful to have a Doctor finally give you a diagnosis. I so appreciate your reply. Most of the meditation has not worked for me mostly because of my stomach or ostomy problems. I’m trying to except my new normal at 78 and the only way I can is completely rest and do nothing during the worst hours. Not sleeping at night doesn’t help but concern about safely of even taking a fourth of sleeping aid scares me. I get up many times because of my ostomy and poor bladder’s control. Thank you so much for the replies. .